APS Support UK privacy notice
APS Support UK is committed to protecting your privacy and handling your personal information responsibly.
We may collect personal information such as your name, contact details, donation history, fundraising activity, or information you provide when contacting us, subscribing to our communications, volunteering, or making a donation.
We use this information to:
- respond to enquiries and provide support;
- administer donations, fundraising activities and events;
- send communications you have requested;
- manage volunteers and supporters; and
- meet our legal and regulatory obligations.
We do not routinely collect special category personal data. However, individuals may occasionally choose to share health-related information with us, for example in connection with APS, support enquiries or fundraising activities. Any such information will be treated sensitively and in accordance with data protection legislation.
We will only use your personal information where we have a lawful basis to do so, will keep it secure, and will retain it only for as long as necessary.
We do not sell personal information to third parties. We may use trusted service providers to help us manage donations, fundraising and communications.
You have the right to request access to the personal information we hold about you, ask for corrections, object to certain processing, or request deletion where appropriate.
If you have any questions about how we use your personal information, please contact:
Data Protection Officer
APS Support UK
The Orchard
Basingstoke
RG21 4AF
dpo@aps-support.org.uk
If you are unhappy with how we have handled your personal data, please tell us by emailing complaints@aps-support.org.uk, or by writing to us at our registered office (address above). We will acknowledge your complaint within 30 calendar days; where a matter is complex we will keep you updated on progress and explain any delay.
If you remain dissatisfied, you have the right to complain to the Information Commissioner's Office.
Cookie notice
This Cookie Notice explains how APS Support UK (the trading name and working title of the Hughes Syndrome Foundation) uses cookies and similar technologies on our website, aps-support.org.uk. It should be read alongside our Privacy Notice, which explains how we handle personal data more generally.
What are cookies?
A cookie is a small text file — containing an identifier made up of a string of letters and numbers — that a website places on your computer, tablet or phone when you visit. Cookies allow the website to recognise your device, remember your preferences and understand how the site is being used.
Cookies may be session cookies, which are deleted when you close your browser, or persistent cookies, which remain on your device until they expire or you delete them. We also use similar technologies such as tags and pixels, which we refer to collectively as “cookies” throughout this notice.
How we use cookies
We use cookies to make our website work as you would expect, to keep it secure, to remember your preferences, and to gather anonymous statistics that help us improve our information and services for people affected by antiphospholipid syndrome (APS).
Strictly necessary cookies are placed on the basis of our legitimate interest in operating a secure, functioning website. All other cookies — including analytics, functionality, donation, embedded content and social media cookies — are only set with your consent, which you give through our cookie banner when you first visit the site. You can withdraw or change your consent at any time (see section 5).
The cookies we use
The table below describes the categories of cookies used on our website and who sets them. The specific cookies and their exact durations may change from time to time as we update the site and the third-party services we rely on.
|
Cookie type |
Purpose |
Who sets it |
Consent needed? |
|
Strictly necessary |
Enable core functions such as page navigation, security and remembering your cookie preferences. The site cannot work properly without them. |
APS Support UK |
No |
|
Performance / analytics |
Help us understand how visitors use the site (pages viewed, time on page, errors) so we can improve it. Data is aggregated and does not identify you personally. |
Google (via Google Tag Manager / Google Analytics) |
Yes |
|
Functionality |
Remember choices you make (such as region or preferences) to give you a more personalised experience. |
APS Support UK |
Yes |
|
Donations & payments |
Process online donations and payments securely, including Gift Aid. |
Enthuse, PayPal, Worldpay |
Yes |
|
Embedded content |
Deliver videos and other content embedded from third-party platforms. |
YouTube (Google) |
Yes |
|
Social media |
Enable sharing and connection with our social channels. |
Facebook, Instagram, Bluesky |
Yes |
Third-party cookies
Some cookies are set by third-party services that appear on, or are linked from, our website. We do not control these cookies, so we encourage you to review the relevant provider's own privacy and cookie information:
- Google (Google Tag Manager, Google Analytics, YouTube) — policies.google.com/technologies/cookies
- Enthuse (donation processing) — see the provider's privacy notice at enthuse.com/privacy
- PayPal and Worldpay (payment processing) — see each provider's cookie and privacy policies.
- Facebook, Instagram and Bluesky (social media) — see each platform's cookie and privacy policies.
Where our pages include embedded content — such as YouTube videos or social media feeds — that content may set cookies on your device and collect information about your interaction with it in the same way as if you had visited the third party's own website.
How to manage or disable cookies
When you first visit our website you can accept or reject non-essential cookies using our cookie banner. You can change your choice at any time by clearing the cookies for our site in your browser and revisiting, which will bring the banner back.
You can also control cookies directly through your browser settings — including blocking or deleting cookies already stored. The following pages explain how:
Please note that if you block or delete strictly necessary cookies, some parts of our website may not work properly. You can also opt out of Google Analytics across all websites by installing the
Google Analytics Opt-out Browser Add-on.
Changes to this notice
We may update this Cookie notice from time to time to reflect changes to the cookies we use or for other operational, legal or regulatory reasons. Any changes will be posted on this page with a revised “Last updated” date. We encourage you to review this page periodically.
Contact us
If you have any questions about this Cookie notice or how we use cookies, please contact us:
Data Protection Officer
APS Support UK
The Orchard
Basingstoke
RG21 4AF
dpo@aps-support.org.uk
You also have the right to complain to the Information Commissioner's Office (ICO), the UK's data protection regulator, at ico.org.uk.
Who we are
APS Support UK is comprised of patrons, trustees, medical advisors and the management team.
What we do
APS Support UK's mission is to save and improve the lives of patients with antiphospholipid syndrome by achieving earlier diagnosis and the best possible treatment.